Look at me now!
Today I was able to forge pieces for my metal sculpture.
Things I learned at the Identity Theft and Fraud Fair
Things I learned that as I patient with a rare disease, that I can do to protect myself from identity theft.
I can, I have, I will....
How I get motivated to continue working on my physical therapy.
Vampire Day -IVIG Infusion
Today is what I call Vampire Day. The reason why is because today I have what I call my blood infusion. The technical term for my blood...
Hydration Day....ugh
How to hydrate in preparation for IVIG.
The Crash
What having a crash is when you have CVID.
Why are we called Zebras?
Why people who have rare diseases are called Zebras
