Vampire Day -IVIG Infusion

Today is what I call Vampire Day. The reason why is because today I have what I call my blood infusion. The technical term for my blood infusion is Intravenous Immunoglobulin G, (IVIG). I bet you’re wondering what that is, right?

Well, let me start at the beginning. In our blood system there are many parts of the immune system. One aspect of the immune system are the antibodies, or immunoglobulins. For short, immunoglobulins are written as Ig, and usually followed by a letter such as A, E, G, and so on. The most common immunoglobulin found in your blood is gamma globulin, (IgG). When you donate blood plasma, gamma globulin (IgG) is collected. The blood plasma then goes through a process that takes months and is highly refined so that it is composed of only gamma globulin, (IgG). Then this gamma globulin is sent to a patient in need, like me, to be infused through an IV. This is how we get the combined term IVIG, and also why I call this my blood infusion. I hope that helps to explain it all.

There is another way to be infused with IgG. It is known as SubQ, or subcutaneous. In this process the gamma globulin is infused into the patient through small needles that are placed just under the skin. The muscles then absorb the IgG and send it throughout the body. (IVIG- the IgG goes directly into the blood system as SubQ goes into the muscles)

I super hydrated yesterday to be prepared today. Gamma globulin, (IgG) is very thick and viscous. I once described it as being like molasses. You need to be well hydrated before, during, and after an IVIG to help the medication get diluted. I have learned that hydration is key to avoiding many of the simple side effects of an infusion.

Due to the IVIG Access Act, I now get my IVIG at home. A nurse that comes to my house to administer the infusion and my overall health during the infusion. The process begins with me taking my pre-meds, or medications that I am to take before the infusion begins. These meds help to reduce possible side effects of the infusion. Next an IV needle in inserted- usually in my arm. My IgG medication is then pumped into me through tubing and an IV pump. The pump controls the rate that the medication is administered into my body.

Infusion rate is an important deal. I need it infused in a very slow rate over about six hours. If the infusion is administered faster, than I can have side effects, some of which can be severe such as anaphylaxis or meningitis.

My nurse with my IVIG pump and medication in a fanny pack, this is much easier than using an IV pole.

During the infusion I need to rest and drink lots of fluids. My nurse monitors the infusion and my health. I usually try to do some knitting, crochet, read a book, or watch tv. Eventually I fall asleep. Once all the medication has been infused, the IV is removed. After the infusion is finished, I typically take a nap. I also continue to drink lots of water and other fluids for the next few day. Side effects can occur days after the infusion and need to be noted if any occur.

Here are some other tips to having a good IVIG.

Drink lots of fluids, especially water
Sports drinks such as Gatorade or Powerade should only be consumed after the IVIG infusion has begun.
Have the IV placed in your non dominate hand, (this is important for when you go potty)
Wear comfortable clothing and pants that are easy to move when going potty
Have something to do to keep you busy. I use books, crafts, and tv.

To all my fellow zebras, have a great infusion!